Data Protection

Privacy Policy

By filling in this form you agree to allow Spina Bifida Hydrocephalus Ireland to retain your information on a secure database.

Spina Bifida Hydrocephalus Ireland will ensure that your information is kept private and protected according to the Data Protection Act 1998. All the information we receive from you will only be used for research or collecting statistics, and to keep you up to date on spina bifida Hydrocephalus Ireland news and the benefits of being a Member. We will never pass on your details to another person or organisation without you agreeing to this.

Spina Bifida Hydrocephalus Ireland is committed to effective statistical recording using a bespoke database. We need this information to gauge the demand and use of services and to identify the need for new services. The statistics show that we are providing an essential service and also support new funding applications.

We recognise that all Service Users and Members should be able to access our services in confidence and we are committed to this principle. All staff and volunteers must ensure that no discussions relating to a Service User or Member takes place outside of the work environment. You can let us know at any time if you do not want Spina Bifida Hydrocephalus Ireland to make contact with you any longer. We will then ensure that your details are removed within 28 days of you telling us.

Breaches of Confidentiality

There may be occasions when it is necessary to breach confidentiality. For example, if a Service User or Member shares information about child abuse; where there is conflict of interest; or where there are legal implications. Spina Bifida Hydrocephalus Ireland recognises that any breach of confidentiality must be treated very seriously.

Any person whose data is held, has a right to access their file provided they give reasonable notice to the organisation. There may be an administration charge for this service or a charge for providing copies.